People stare at Logan's "ear" all the time, I have just come accustom to it. It doesn't bother me, it never has. Logan's CI is what makes him special, unique and I want him to grow up knowing that and appreciating it. I actually prefer it when strangers (politely) ask about it rather than point and whisper. I have had many different assumptions from people as to "what is on his head."
I actually did have someone say to me, "How cute! He wants to be a big boy with his pretend bluetooth." I thought this story was outrageous, but I guess the CI does look quite similar. I have also had someone ask me, "What kind of brain disorder does your son have?" And one of my most memorable was when we were at Disneyland last year and a man came to me and said he wanted to pray for my son to heal him and give him blessings. He proceeded to lay his hands on Logan's head and pray. I interrupted him and explained that the Lord had already "healed" him by providing a way for him to hear and that this little device was our blessing. Children are my favorite. We have been in the check-out lines many times when a young child will ask out loud, to his mother, "What is that thing on his ear?" The mothers are always extremely embarrassed and either ignore their child or whisper to them that it is not polite to say things like that. I always smile and go forward with telling the child that when Logan was born his ears didn't work so well, so now he gets to wear this cool blinking thing on his ear to help him hear and learn to talk like other children.
Again, none of this has ever bothered me . . . until I saw it bother Logan. He, too, has adjusted well to wearing the implant-it's a part of his every day. But the other day we were in the post office and this older woman was staring at Logan's implant. I smiled at her and then looked at Logan only to notice that he was covering up his implant with his hand and burying his head into me. I asked him what was wrong and he pointed to his ear and then pointed to the woman. She quickly turned away and I apologized to her, as to which she did the same. It broke my heart. When did Logan become self conscience about his implant? Logan has always thought his implant was cool, with the blinking light and the cool stickers. I wonder why that changed. We thought that this would possibly become an issue as he grows older, and we have prepared ourselves to maybe have to deal with this in the future. He is only 3 1/2 years old, and it is already starting. As silly as it sounds, this was actually one of my concerns about getting a second implant...he would no longer have a side of his head that looked normal.
I think sometimes we forget what a miracle this really has been. I am grateful for the opportunity to share our joy with others. Logan is by no means speaking "normally" so we forget how far he has actually come. We are coming up on Logan's 1 year "hearing birthday" and are still astonished and amazed when something new comes out of his mouth. We know how blessed he is and we will make sure that he knows that as well as he grows and continues on his journey.
6 comments:
That brought tears to my eyes. He's too little to care what people think :( Poor kiddo!
I guess the time will come when our little man will probably take notice of others too. He knows his ears are different and sometimes wants us to wear Kaci Koala's CI, but he is still in the "my ears are cooler than yours" stage and loves to show them to people.
One day, they both will be very proud of them and will understand how wonderful they are!
Hello,
Stumbled in here... and your story brought a tear to my eye. As mom's, of course we don't like to see our babies have to deal with these kinds of injustices.
My son didn't start wearing hearing aids until he was 4 yrs old... and, I don't remember him ever being really self conscious about it until he was almost 8 yrs old. 3rd grade was toughth. Kids can be cruel... and adults can be harsh too without even realizing it.
I've always approached this by telling him he's lucky he has the HA's... that there's lots of other problems people have that there is no "fix" for... USUALLY this helps...
So far, his "bad times" with them have been few... and, our "not an option/count your blessings" approach has worked. I can only keep my fingers crossed...
Logan is such an amazing little boy! What a blessing to have a really cool ear! And he has some great parents helping him along the way!! There are some wacky people out there with no manners.
One day he'll fully understand and appreciate what you guys have gone through to help him hear. It's too bad he understands being self conscious first, but that is the world we live in. It's a good thing he is surrounded by such a solid support system.
Maybe he could start explaining to people why he is proud to have such an amazing thing helping him hear wonderful sounds every day. He's tough kid or he wouldn't have been given this trial. And you guys are amazing parents so it will all work out in the end.
This is also a good reminder to everyone else to be sensitive to people who aren't "perfect" (though none of us are) and not shy away from asking questions politely. It really is more of an insult to stand there and whisper because it's totally obvious, not to mention rude. I'm glad to read some of your experiences so I don't end up being one of those people who puts a foot in my mouth!
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does the reply work???
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